Next Steps

This guy has something to tell you!

 

NO TRACH FOR ME! (At least for now)

Appointment went well. We are going to continue to monitor him and play with BiPAP settings. They were very happy to see how active and mobile he is, which gives us hope that he will overcome this with some time. We will do a follow up sleep study in August to see how he is progressing. This is very encouraging! 

We now have two pulmonology doctors following him. His pulmonologist who has had him since we started with them is a fellow, which means she's still studying to be a specialist, so we will add an attending who is a sleep doctor. This is great news because attendings have a lot more "pull" in getting things authorized and tend to be more willing to try unique things. 

Additionally, we have found out that there are quite a few policies and procedures that have been changed because of Wyatt. This is a good thing for us, as some of the policies were not working in our favor. At Wyatt's next sleep study he will have a respiratory therapist there who will adjust his BiPAP, as the sleep team uses a different machine which may not give us a good picture of how he does on his own machine. During the next sleep study all information during the study, or if anything happens, they will call his sleep doc and not the on call doctor. This will help with continuity of care. 

All in all, this is encouraging news. We continue to be hopeful that he's on a good path.