...update...

Wow. It's been a year since I've posted. Over a year. So much has happened in the past year. Some good...some bad. Whenever I think about updating this space, I wonder if one day Wyatt will look back and say, "Gee mom, you really embarrassed me!" But I've recently realized that maybe this space was never really about him. I mean, sure the title is his name. It's ALL about him. However, I'm a gal who uses words. Words to remember things. Words to express my feelings. Words to FEEL. For that reason, I'm going to try and update this space more. I want to look back one day and remember just how far he's come. I want to remember the good. The bad. The ugly. Because each moment is a part of his journey. Our journey. 

  

Wyatt has grown SO much since you've last seen him. This photo was from Valentine's Day 2016. Just wait until you see him now. I'll save that for the end. 

What's happened in the last year? 

 

Hmmmm. (This was March 2016)

Well, Wyatt has shown us he's a man with his own plan. In November of 2016, after weeks of poor weight gain, lots of vomiting, and a never ending cold, we took him to the hospital. He was admitted and an NG tube was placed. You may recognize it from some of his early NICU photos. An NG tube is a nasogastric tube, feeding him through a tube into his stomach. 

 

You can see the tube coming out of his nose. This was in November of 2016. During that time, he had difficulty with tolerating feeds, showing signs of significant reflux (gagging, aspirating, vomiting) and they switched it to an ND tube. This is the same type of tube but instead of feeds going into the stomach, they continued the tube through the pyloris (a flap separating the stomach and small intestines) and into the duodenum. This decreased his reflux almost instantly. I know what you're thinking, problem solved! Nope. He LOVES to keep us on our toes. During this same time, he was having difficulties with his oxygen saturation dipping down when he was sleeping, so they sent us home with oxygen at night. 

 (Cranky after his first haircut and right before a trip to the ER)

 

Wyatt celebrated his first birthday surrounded by family and friends. He was so tuckered out from celebrating, he slept through cake. Which was probably a good thing since he couldn't really enjoy it anyway. 

Where was I? Oh yeah. Turns out an ND tube is really easy to pull out. After 8 replacements (2 of which were in Michigan at two different hospitals!) and a few hospital stays, they determined we would make the transition to a gtube. A gtube is a gastronomy tube. A gastronomy tube is a more permanent solution and would be less likely to get pulled out regularly. So on December 7, 2016, we handed our little boy over to the surgical team and a gtube was placed. He had some hiccups after surgery and required an overnight stay in the PICU because he's so dramatic sometimes (gets that from his dad, I'm sure!) and had a heck of a time recovering from sedation so he remained intubated overnight. He was then transferred to a regular floor and spent 10 days recovering. 

 

Straight chillin' after that surgery. He celebrated his first birthday at Hopkins, surrounded by some of his favorite nurses. 

 

On the left: one week old. On the right: one year old.

...To be continued...

...Blizzard of '16...

Have no fear, we survived (are surviving?) the blizzard of '16. We got around 24 inches of snow in our yard, 29.2 at BWI, which was a record. The most snowfall recorded in history at BWI. Insane. It started in the afternoon on Friday and continued through just before midnight last night. Anyway, on to the important stuff. 

This is how Wyatt spent most of the blizzard.

Let's see... since our last update Wy Guy has packed on the pounds, er, ounces. On Thursday last week he was up to 5 pounds 8 ounces! We were released last week from weekly visits to the pediatrician and instead will just be monitored by the nurse next week, then we'll check back in with the pediatrician the following week. 

That face. It melts my heart.

Last week we also had a visit from the occupational therapist. A referral was made to them because of the feeding issues he had in the NICU. She came out and gave me some things to work on with him in terms of developmental things like tummy time. She did notice he has a bit of a flat spot on the back of his head, but it isn't impacting in the front of his head. We will keep an eye on it and also work on positioning to be sure we balance it out. Our daily routine now includes time to work on positioning and playing on his kick 'n play piano. Tummy time in the traditional sense, which is typically on the floor playing, isn't working right now. Any time I try it with him, he screams. Super ironic because he loves to lay on his tummy on my chest and lifts his head up to look at me or turns to look around the room. Silly boy. 

That hair. And the $50k blanket from Hopkins. Shhh. Don't tell.
(We call it the 50k blanket because that's about what it cost for his time there...)

Please continue to pray that our sweet guy keeps gaining weight, continues to eat well, and has less reflux. 

Love,

Lori, Brian & Wyatt

Oh! These two are pretty cute, too. 

...1/16/16...

It's been another whirlwind week with our little guy. In case you didn't know, we are absolutely smitten with our little man, which makes getting actual things (like updating blogs, doing dishes, taking a shower) done throughout the day. I mean, if I have to choose between laundry and snuggling with this dude? Snuggling wins 100% of the time.

That face. It's just so kissable. Trust me. 

We had a pediatrician appointment this week for a weight check. At that appointment he was 4 pounds 15 ounces. So close to 5 pounds! On Thursday the nurse came for a weight check and guess what?! Our little dude weighed in at 5 pounds 1 ounce! There was a lot of celebrating seeing that 5 on the scale. It's so hard to believe our little man once got down to 3 pounds 9 ounces. When I scroll through photos from his first days of life, I see such a difference in his face. It's hard to believe that this week was my due date. Instead of celebrating a birthday, we are celebrating 5 weeks of life.

Left: 2 days old Right: today
Look how far we've come in just a few weeks!

Wyatt had his audiology appointment this week. Turns out our guy is too little for the hearing test in the office. The initial test they performed showed little to no activity, but the audiologist explained this is very common with babies because it tests for activity in the ear. If there is fluid in the ear, the probe cannot detect the activity. The second test showed activity in the inner ear. It was minimal, but there was activity. The big test was the one that could not be completed. We will return in a month to try the test again. At that time if it cannot be completed, he will be referred to the ENT. The ENT will then help to determine if there is fluid causing the issue and if there is, next steps for that. I had no idea there were different doctors working on different parts of the ear. Such a small part of our body, hugely important for sure, but has two different doctors working on it. Hopefully it's just a fluid issue that will resolve itself before we go back to the audiologist.

Such a sleepy boy!

As far as brady/apnea episodes, little dude seems to be doing well. If he has a brady, it usually is when he is eating. He has not had any color changes in a few weeks, which is excellent! It means his little body is getting stronger and more mature each day.

We found out this week we were denied the Synagis, the RSV medicine. It made me chuckle (the ONLY time I chuckled during the conversation with the insurance company) to hear the nurse say his heart defect is "insignificant". How ironic. Defect, by definition, implies imperfection or deficiency. I'm not sure how any heart defect is insignificant. Certainly there are defects that are much more severe, but his little heart doesn't work correctly. I have yet to speak with the pediatrician to see if we have a case to fight it or not. If we don't, it will mean that we will continue to be diligent about hand washing and keeping him away from as many germs as we can. I just happened to see a post on facebook about a former NICU baby who is back in the hospital because of RSV. I pray this is not us.

Catching flies while sleeping.

A couple of people have said it's difficult to get a perspective of his size by looking at photos. Here is some perspective. The pacifier in his mouth is a normal pacifier. It is approximately two inches in diameter.

Thank you for your continued thoughts and prayers. We are so lucky to have so many people in our lives who are following our journey. Please continue to pray that little man grows, grows, GROWS!

Love,
Lori, Brian & Wyatt

...update...

Phew. I thought we were busy going back and forth between home and the hospital, life with a newborn at home is just as busy! It certainly doesn't help that I would MUCH rather cuddle our little dude than sit down at the computer and whip out a blog post. I mean, he's just so cuddly and the computer, well, it's cold and not snuggly. However, I've heard from a few of you that you're dying for an update. Ask and you shall receive. (Although I suspect some of you really come here for the photos. I don't blame you. Honestly.)

Mr. Wyatt has gone to a few appointments the last week or so. During that time, we were mostly focusing on weight gain. As of today, Wyatt weighs in at 4 pounds 15 ounces. He is so close to breaking the 5 pound mark! 

This little guy is starting to spend more of his time alert, eyes open, scanning the room. Of course, his teacher mother tries to make him learn all the time, practicing scanning the room, looking toward different directions, and stretching and kicking those legs. Poor kid. Can't catch a break with a teacher mommy 

This week we have an appointment with the audiologist. Wyatt failed his newborn hearing test once with his right ear and once with his left ear, passing the opposite ear each time. The NICU team shared it's not terribly uncommon, and chances increase in c-section babies because they are more likely to have fluid in their ears. We will cross our fingers that's the case and we can get it cleared up soon. 

Mommy and daddy are adjusting to life with a baby in the house. The dogs sre, too. So far, Duke just loves giving drive by kisses and Gracie only wants to cuddle. Some things never change, I suppose. 

Wyatt celebrated his 1 month birthday on Saturday. So hard to believe that this little guy has been in our lives for a month. It seems like he's been here forever, but it also seems like just yesterday. I suppose when you've dreamed of holding your sweet baby for so many years, it's easy to feel like he's been part of your life forever. 

We thank each of you for your continued support and prayers for our little guy. He's still a little dude and needs to grow, grow, grow. We also need to get through cold and flu season. What is just a minor inconvenience for relatively healthy adults, can be life threatening for a tiny baby. We are crossing our fingers and toes that insurance will approve him for the RSV vaccine, which will provide some support against the scary illness. RSV in a preemie and a baby with a heart condition can be life threatening. So please pray that we can keep those germs to a minimum this season. 

With love,

Lori, Brian, & Wyatt

...1/2/16...

Happy New Year! Wyatt spent New Year's Eve partying it up & staying up late!

The bib is bigger than he is!

We have adjusted well to our little guy being home. He is a good sleeper (crossing my fingers he stays that way!) and is a pretty relaxed little dude. My mom is here still, so she is helping us to get adjusted while Brian is working midnights. 

Wyatt's favorite thing to do, taking a nap. 

We had our first pediatrician appointment today. He did not gain any weight which wasn't a surprise, as the home health nurse was here yesterday and she weighed him and he was 4 pounds 9.5 ounces. The doctor and nurse explained that there is some variability among scales but to be sure, we will continue with a weight check later this week. I am hopeful that once he settles in, we find that he grows like a weed. 

The dogs are trying to adjust to having this little human in their home. I am very surprised at how calm they have been, given they are both still puppies themselves. Gracie appears to be pretty protective (in a safe way!) of Wyatt, while Duke likes to enjoy him from a distance, with the occasional drive by sniff/kiss. 

For now, we will continue to do everything we can to encourage our little dude to grow, grow, GROW! Nana and I are convinced that means extra snuggles and LOTS of kisses. 

Love,

Lori, Brian & Wyatt

...We're HOME!...

Thank you to all of the wonderful people who helped our family through this journey!

This was on Wyatt's board today, which brought a HUGE smile to our faces. We knew it was our day to say goodbye to the NICU and bring our little guy home. After 22 days in the hospital, 2 different NICU's, a variety of doctors/nurses/techs, and lots of tears, our guy was ours to bring home. 

"What?! Did they just say I'm breaking free today?"

We joined the team for rounds and even broke the rules while doing it! The AAMC NICU has a (stupid) rule that only 2 people can be in the room at a time. Well, that's fine and dandy but not when it's the last rounds and we needed to have all of us listening to the rounds/discharge instructions. For this rule follower, it felt great to break the rules for once! 

Waiting patiently to be released

The morning seemed to drag on while we waited for everyone to finish up their part of the discharge packet and we reviewed all of the information we needed before taking Wyatt home. If you've never experienced hospital time, consider yourself lucky. It's essentially the same as watching paint dry. Soon = no less than an hour. Around 1:30 in the afternoon we put Wyatt in the car seat and said our goodbyes. 

Getting ready to go!

I would like to say I was really sad to say goodbye, but that would be a lie. While I'm eternally grateful for those who cared for our son, I'm so excited to embark on the journey of raising our baby boy in our home, where he belongs. 

Our family, ready to go!

Thank you to each one of you who has shared our journey. We appreciate each one of you for thinking of our family and sharing our laughter and tears along the way. Our time in the NICU is over, but our journey has just begun. 

I plan to continue writing in this space, as my hope for starting this was for it to be a place to share our lives with our loved ones, especially those who are not near. Please stick around and watch Wyatt grow. Here's to a new year filled with love, laughter, & happily ever after. May 2016 be just as special as 2015. 

With joyful hearts,

Lori, Brian & Wyatt

...12.30.15...

Today was a pretty fantastic day for our little guy. The team uttered the words we have been waiting to hear! I don't want to jinx it, but there is a really great chance our little guy will come home in 2015 and ring in the new year with us! 

Catching flies while sleeping on Nana.

Last night Wyatt passed his car seat test, which tells us that things are going in the right direction. In order to pass, he had to go 90 minutes without having a brady lasting longer than 30 seconds. This is a little different than the alarms on his heart monitor, which sounds much sooner than that. He did require some additional head supports while in the car seat, but that is something we can replicate and is not uncommon for premature or late pre-term babies. Our little man just needs some extra support and he will get it. 

Daddy feeding Wyatt

Brian was able to feed Wyatt today and both of my boys did an awesome job. I had to leave for a doctor's appointment, so Brian was in charge of the 11 am feed while Nana watched. The speech therapist joined for the feed to give pointers for a successful feed. Wyatt nursed for his 2 pm and 5 pm feeds and did awesome for those too!

Please stop being so cute!

We continue to pray that our little guy grows and grows, while learning all of the skills he needs. Please pray that the next 12 hours or so go smoothly and that Wyatt is able to join us at home, if he is ready. Mommy & Daddy probably need some prayers as well-- bringing home a baby is tough work and bringing home a baby with some medical issues is a little scary. We know he will do amazing things at home, but we also know there may be some anxiety as well. 

Wyatt says, "I'm ready to do this! I can't wait to meet my puppies and see my new digs!"

Thanks for your continued support,

Lori, Brian & Wyatt

...12.29.15...

Today was a fairly good day for our little guy! We did our usual routine this morning, mom and I went to the hospital to join rounds and Brian stayed back with the dogs, joining for the afternoon shift and switching with mom. During rounds this morning, his team was very pleased with his weight gain (40 grams), his decrease in frequency of cardiac events, and his nursing. It was a hearty, "Good job, Wyatt!" for rounds. It seems like the prevacid is doing its job and helping with the reflux. The nurse practitioner said if he keeps this up, we could have him home soon! He needs to maintain his weight and continue the downward trend in dips and brady's. 

This is what milk drunk looks like.

He nursed today for 3 feeds and did a great job! He seems to be getting the hang of it and is pacing himself, which is a huge step for him. We will also continue to work on bottle feeds, as the bottle feeds contain the fortifier mixed in the breast milk which will also help to pack on some pounds. He also requires some iron and vitamin d, which needs to be given mixed in with breast milk to encourage him to take it. It smells horrible, so I can only imagine it tastes horrible. 

A thumb sucker?!

We are in big trouble with this kid. You can take away a pacifier but you can't take away a thumb! My mom reminded me that a thumb can't get lost, but I still think we are in for a wild ride with this kid. The nurses commented that they had never seen a baby this young find their thumb. I guess we have a strong minded little fella (was their any doubt-- he favors his father after all) and he will find a way to make himself happy. This seems to happen most when we are changing his diaper. It's likely because this routine is unswaddling him, temp check, diaper change, quick measurements of his belly, then we feed. It can sometimes take a minute or two to do all of those things and he wants to eat. I'm glad he can self-soothe, though.

All in all, a good day for Wy guy. We continue to cross our fingers that things go well and we continue to see all good things so we can take our guy home.

Thanks for your continued thoughts and prayers!

Love,

Lori, Brian & Wyatt

...12/28/15...

Hi. Lori here, thanks to Jessica for updating last night. I was sent to bed by my mother and Brian last night. Thankfully they let me eat dinner first. 

Today was another roller coaster day. It started off with rounds and turns out the team was concerned about his weight, as he hadn't officially gained since being transferred almost a week ago. They are attributing this to his terrible reflux, as this causes him to work really hard to maintain his feeds and he throws up a lot, causing him to not gain. The team is new this week and as such is new to Wyatt and us. When we talked through this concern today the new team decided it was time to try medication as an intervention. They put him on prevacid and are hoping this course of meds will help. They also determined that it was okay to continue nursing unless we think he isn't getting enough that way. When he isn't with me, he will get the rice cereal in with the breastmilk in addition to the fortifiers. The fortifiers beef up the caloric value of the breastmilk, so essentially just add some additional fat without changing the nutrition. We are hoping this combo will help our little man gain some weight. 

Wy Guy hanging out in the MamaRoo. Totally cool that the NICU provided this AND it helps with his reflux.

At his 11 am feed, the speech therapist joined us to see how he did with his latch and swallow. He wasn't digging the fact that someone was watching him and had a tough feed. He had a few dips, which are actually what we have been referring to as brady's. Turns out we were incorrect. A "dip" is when his heart rate drops but he brings it back up on his own in less than 12 seconds. A brady is when the dip in his hear rate drops for longer than 12 seconds and may or may not require stimulation. Stimulation ranges from tapping him on the back repeatedly, to a quick sternum tap. He did not have a brady during this feed, but did have one afterwards as milk was pouring out of his nose (reflux at its finest!). The team has commented repeatedly how good natured he is, even when we are bulbing him (the little blue snot sucker in his nose/mouth to suck out milk) or when he is refluxing. He doesn't complain much. May that continue on throughout his life!

After the torturous 11 am feed, I was a little nervous to nurse him. The lactation consultant joined us for this feed and our little guy did AWESOME! He fed for the full 20 minutes, which he hasn't done with the bottle feeds, as he gets tired and often falls asleep during the bottle feed. Not this time! He didn't have any dips during this feed, but did have a brady right after. This was because he threw up and poor guy couldn't get it out of his nose. His 5 pm feed was another nursing session and he did good again. Only one brady and that was likely because he just filled up too quickly and forgot to take a breath. Our little man appears to love to nurse, knock on wood!

You know, just hanging out after chugging some milk. 

I just got off the phone with his night nurse and our little guy is back up to 2070 grams, which is 4 pounds 9 ounces. I'm hoping he will continue to gain, gain, gain! His nurse said he was happily swinging in the MamaRoo. Don't worry, Nana (my mom) already bought him his own MamaRoo so when he comes home, he has a deluxe swing to hang out in, as he has to be upright for at least 30 minutes after he eats. 

Thanks for your continued thoughts and prayers. We continue to pray that he gains weight, tolerates feeds, and that those who are making decisions for his care do so thoughtfully. The more we can control the reflux, the less likely he is to have brady's or dips. 

Here's to a good report tomorrow!

Love,

Lori, Brian & Wyatt

... Guest Blogging (from Jess) ...

Hello all!

It's Jess, stepping in for one tired mama. Sue sent Lori off to bed this evening so she could get some shut-eye (turns out even when you are a mom, your mom still moms you! Thanks Sue!). As such, I get to take over.

I'm considering using this time to try out some new jokes, but instead, I'll get to what you all want to hear about ... the man of the hour, Wyatt!

Seriously, find me someone cuter!

Wy guy had an ok day today. He is now nursing, as tolerated, and in my update this evening from Lori, he'd nursed like a champ. They're continuing to supplement with rice cereal, in hopes that it helps him with the reflux, and helps him to gain some weight.

Speaking of which, Wyatt's weight is down about 50 grams. For those of you who don't know what that means (me!), he weighs in at 4 lbs, 7 oz. While concerning to those of us who love Wyatt and the K family, the doctors are ok with it for now. When measuring in the NICU, they look at his weight gain week over week, not day over day. Hopefully, this is an outlier and we'll see him creeping closer to 5 lbs soon. In the meantime, he's resting up.

This is how one of his parents looks while sleeping. Which one? Hint: I've never seen Brian sleep.

Since I've been given the reins for the evening (and possibly never again), I want to take a second to write a side note. While Wyatt is clearly the main focus, his mom deserves a little attention too.

There's something incredible about watching your best friend go on her journey to become a mother. You find out about the positive pregnancy test, watch her eat what seemed like thousands of Saltines, and see her cute belly grow. You get excited with her, experiencing the anticipation of bringing home her little boy.

Lori went through these milestones, but has had a different experience than expected these last few weeks. While I know this hasn't exactly been the journey she pictured, Lori has handled it with such grace. I'm not a mom yet, but when I am, I hope I do so with as much love and devotion as I've seen from Lori.

And so, tonight, yes, I ask for thoughts for Wyatt, our man of the hour. Thoughts and vibes that he keep growing and thriving and stops (or at least minimizes) the reflux and the brady episodes. But I also ask for thoughts for my best girl, Lori, and for Brian. They're ready to bring Wy guy home and begin the next step of their adventure as a family in their own home.

My favorite picture of the day!

Love to all,

Jess

...12.26.15...

Quick update...

Our little man is getting bigger! He's up to 4 pounds 9.2 ounces. Go figure. I just bought two packs of preemie diapers in anticipation of him coming home soon. Have no fear, I'll gladly let those go to waste to have my little man grow, grow, grow!

Last night Wyatt failed his car seat test within 10 minutes of starting it, which isn't surprising. He's still struggling with reflux during and after feeds. Rumors are swirling about possible discharge coming up, so if he doesn't pass before then, he will have to ride with someone in the back seat in case he has a brady and requires stimulation. Babies who don't have monitors would also require a monitor for the car, but we are already going home with a heart monitor so that's no big deal.

Today was a better day in terms of feeding. We (especially me!) are very thankful for a better day today. His feeds were less "eventful" and we are all getting more comfortable with how to handle the brady episodes when they happen. 

I'm off to get some sleep... something that is quite elusive these days and I suspect will only continue with a newborn in the house. 

Love,

Lori, Brian & Wyatt

...Merry Christmas!...

Wyatt wishes each of you a very Merry Christmas!

The NICU staff made a footprint card with his name and "My First Christmas". It will definitely be something we treasure for many years to come. 

Today I was able to join the staff for rounds. They decided to add rice cereal to his feeds in hopes that the cereal would weigh down the breastmilk to help remind his esophagus to close, as that is what causes the reflux. The reflux then causes the brady and or apnea episode. They added it to his noon feed first and that one was a bit of a struggle for our little guy, but it likely was not because of the cereal and more because of the iron they add to his milk because he's anemic. The iron smells horrible and the nurses have shared it tastes horrible too. He has yet to do well with the feed with the iron added. 

His 3pm feed went much better and he had zero brady's during the feeding. He had a few after, but they were correlated to when he spit up or sneezed. His 6pm feed was not so great. He had a couple during the feed itself and a couple after the feed. Each of these caused him to turn blue or gray and one was almost 30 seconds long. I was sobbing. It's such a helpless feeling watching your child in pain and be unable to help them. All we can do during these episodes is to rub his back, tap his feet, or rub his sternum to remind him to breathe. Again, just a very scary thing to watch. I am forever grateful to the nurses who have to help me through these moments. I can imagine I don't make their jobs any easier as I require more reassurance than their actual patient. 

My mom arrived this afternoon and we are so thankful she is here, as Brian had to work for the holiday and is on midnights so he needs to sleep during the day. This allowed me to have company at the hospital while helping to care for our little man and allowed for Brian to have some peace and quiet at the house. We are hopeful Wyatt will be discharged while she is here so we can have an extra set of hands while trying to get acquainted with our new normal with a newborn at home. Especially one who is on a heart monitor.

I hope each of you enjoyed your holiday. I must say, today didn't really feel like Christmas. We look forward to the many years ahead with our little man at home, where he belongs.

Love,

Lori, Brian & Wyatt 

...Christmas Eve...

Today was a bit of a rocky day. We started off the day thinking we were heading home & all that stood between us and freedom was a car seat test. Unfortunately, Wyatt had different plans for us. He had some difficulty feeding today, causing quite a few brady episodes. They all still seem to correlate to feeding, pointing toward reflux continuing to be an issue. In the beginning of the day, they were only occurring when I fed him and not when the nurse fed him. By the end of the day, it didn't matter who was feeding him or if he was getting a bottle of breast milk or nursing-- he was still having brady's.

When Brian and I walked in and saw him having an episode with the nurse, we knew right then that we wouldn't be comfortable taking him home and asked the nurse if we could speak with the nurse practitioner (his provider today) and everyone was in agreement that he should stay a little longer. They ran some blood tests to see if there is an underlying infection or something they are missing. We will see what that yields.

One of the episodes tonight caused him to turn very pale and was very, very, very scary for us.
We know that this is absolutely the best place for him and while we are disappointed he isn't home tonight with us, we know we have many holidays with our little guy and this is just a small hurdle. There is talk that he could come home in the coming days, assuming he gets his feeds under control. We were trained today on a heart monitor that will come home with him, ensuring we can monitor his heart rate when we aren't right next to him.

It is difficult for us this evening, knowing our son is in a hospital on his first Christmas Eve. We are so thankful for those who are unable to be with their families tonight in order to care for those in the hospital, along with the first responders, like Brian, who are working and away from their families. We also are thinking of those who are celebrating their first Christmas with an empty place at their table. Hug your loved ones a little tighter tonight.

We continue to pray that Wyatt matures and gets the hang of eating and breathing at the same time. We also pray that if it is reflux that's bothering him, we can find a solution for it. Please also pray for those making decisions about his care, that they not make these big decisions without carefully considering all of the options and outcomes.

Love,
Lori, Brian & Wyatt