Heart Update and Other Happenings!

Our favorite blonde bomber had some pictures taken of his heart yesterday and doc says all is well! We headed to cardiology at the recommendation of our Pulm team, following our wonky sleep study a little bit ago. They wanted us to check in with cardiology to be sure it wasn’t because of a heart issue that had progressed or something had changed. From a cardiac standpoint, this guy looks great. His murmur is still there and his pulmonary valve is still dysplastic, but neither issue has progressed and neither one is causing concern for his heart. It’s still beating as it should. We will continue to follow up and monitor for signs of pulmonary hypertension, which he’s at greater risk due to his chronic lung disease and low muscle tone. 

{Photo collage of Wyatt at his cardiology appointment. In the top left photo he’s getting his echocardiogram. Top right photo he has covered his face with a towel because he was extra silly. Bottom left photo he has a cheesy grin and bottom right photo he’s giggling with his mom while attempting to get a selfie.}

Our next step in the quest for some answers after his wonky sleepy study is an MRI. We met with neuro recently and they agreed an MRI is needed to be sure nothing has changed in his brain which may be causing his brain to forget some of the things it should be doing- taking breaths repeatedly, keeping the heart rate strong, and moving oxygenated and deoxygenated blood. 

{Photo of Wyatt playing in a Tupperware bowl filled with water. He’s in his blue and red pajamas, reaching in to grab a measuring cup. The bowl also has a sponge and measuring spoon in the water. Wyatt looks determined to get the lime green measuring cup.}

Our hope is we have the MRI soon and it rules out anything scary. At this point, there’s probably also a really good chance that Wyatt is just being Wyatt and there’s no actual medical explanation for what’s causing the concern. He’s definitely unique and as our team has reminded us before, they often have to throw out what they’ve learned in med school when it comes to Wyatt. He charts his own course. 

Wyatt continues to progress in his therapies and we are looking forward to a more relaxing summer with a few less therapies. We will continue with private physical therapy and feeding therapy each week, but will be taking a break from OT and school. 

Will update when we have more information about the MRI. 

Mother’s Day

Here’s to the boy who gave me the best title, Mom. Our journey has been full of twists and turns, but nevertheless, this guy has taught me a love I never knew existed. 

Some of our photos may have unusual backgrounds like hospital beds and ICU rooms, but they show a lot of love. 

Thanks for making me a mama, Wyatt. Now... if you’ll just let me get a full nights sleep, I’d appreciate it. 

And so it Remains, He’s One in a Million

We constantly joke Wyatt is quite literally one in a million (one diagnosis proves he’s one in 100,000 and his combo of diagnoses make him closer to one in a million) and we have had numerous specialists admit he stumps them. Today was no different. 

Today’s adventure had us back up with our favorite team, Pulmonology. Wyatt had a follow up in office and it happened that his sleep study results were also available. I was prepared for some disappointment, as Wyatt only slept for four hours during the study and I knew they were waiting for REM to begin changing his vent settings. He barely hit REM and it was not sufficient time to attempt weaning. 

{Photo of Wyatt, tucked in for his sleep study. He’s wearing bandages around his head to cover the electrodes and his giraffe pattern BiPAP mask is over it.}

His CO2 levels during the study were steady and great. This was very encouraging news, as his CO2 levels have typically been somewhat elevated. This tells us the current interventions are working. In his short sleep, he had minimal number of apnea events and none of them were central apnea events. This is great news! 

The study did reveal some unusual levels for his oxygen saturation levels that were much different from previous sat levels and Pulm feels this may be indicative of some other things going on, not related to his breathing. The sat levels were low and not related to apnea or shallow breathing, which is common in sleep apnea. And we know the BiPAP is doing its job, so the unexplained low sats mean we need to do some investigating. There’s a chance it’s cardiac, neurological or lung related. But his lungs look and sound great, so it’s likely not lungs. 

We follow up with neuro next month and will bump up our cardiology visit to get an echo done sooner than planned. For now, we know he is monitored closely while sleeping and we have next steps. Once again, a top doc reminded us that our toddler son is outsmarting a team of docs. 

He’s lucky he’s cute. 

{Photo of Wyatt’s mom snuggling a pajama clad Wyatt, who has his hands around her neck. She has a smirk on her face, as if to confirm Wyatt is lucky he is cute}

April and Lots to Share

Wow. It’s April already?! Time sure has flown this year. The great news is we have remained relatively healthy so far this year and have really cut down on our unexpected visits to our friends at Hopkins. We still hang out for planned visits, of course. 

The biggest news we have is our guy is doing some amazing things. He’s attempting to stand and WALK. I maintain, not bad for a kid who has had some doubters along the way. 

Here’s a video of Wyatt taking steps with his PT intern, Mya. 

Tomorrow is a big night for us, as he has a follow up sleep study planned. The sleep study is to determine if his current settings are appropriate and to see if O2 continues to be required while he sleeps. During his last hospital stay, we had great difficulty weaning him from the oxygen and we left the hospital with a small amount bled in while sleeping (that’s a fancy medical term which essential means he was getting oxygen through his BiPAP). During our attempted weans, he struggled to maintain his oxygen saturations. So after meeting with his pulmonology team, we determined we wouldn’t mess with weaning and instead let him remain on the 1/2 L of O2. 

As always, we hope for a good outcome tomorrow night. A good outcome means we are sent home and not to the hospital and that Wyatt continues to show us what he needs while sleeping. The best outcome would be a decrease in his settings, but we remain that safety while he sleeps will always be our priority, so if his settings need adjusting, we hope it isn’t to a level that may require an alternate intervention. 

{Photo of Wyatt, wearing a blue jacket and inquisitive look while swinging in his new swing at home}

Wyatt has had some adventures to the park, to an indoor water park, and we added in feeding therapy to his schedule. Our hope is an increased focus on oral feeds will allow for some flexibility with his feeding. Currently, he is attached to his feeding pump 20 hours a day. As he becomes more mobile, we are facing the challenge of keeping the pump and backpack going along with him. Sometimes you can find an adult (or kid) jumping or running over to him to untangle him or push the pump toward him. The fear being, if he gets to the end of the tubing, he could pull out his feeding tube. Because he is GJ fed, it is not as simple as replacing it at home (or on the go), it requires sedation and Interventional Radiology replacement. So any additional time we can have him off feeds, will certainly help. 

{Photo is a black and white photo zoomed in on Wyatt’s face. He’s sleeping peacefully with his hand resting on his moms chest and his mouth wide open. Some people have reported this is exactly how his mom sleeps. She will neither confirm nor deny.}

We welcome your prayers and positive thoughts for a smooth sleep study, continued progress with oral feeds and with motor development! As always, thank you for joining us on our journey with Wyatt. 

Well That was Dramatic

If you know our guy, you know he has a flair for the dramatic. He has strong opinions and he will let you know them. Sometimes I like to joke that he’s just like his dad... then I remember that might be a bit of a lie (I’m sure it’s because he takes after someone else see in our family line, can’t be he takes after his mama. Nope. I refuse to believe that!).

Last night Wyatt woke up around 10 pm, with quite a startle and some coughing. I got up out of bed to check in him and noticed he was turning a funny shade, his coughing switched to choking/retching and he was gargling on some secretions while doing some jerky body movements.  I knew something was off, but his dad wasn’t home (he’s the calm one) so I called the neighbor, who is an EMT. She rushed over, assessed the situation and directed me to call an ambulance. We popped him back on BiPAP to help support his breathing and waited for help to arrive. His vitals were off the charts, with HR getting into the 200’s and sats bouncing between normal and abnormal. 

When the paramedics arrived, we gave them the run down and they packed him up to head to the hospital. We were able to get him stable enough to make the longer trek to Hopkins, which is always preferred since that’s where his medical team is, along with access to more intensive services. 

We arrived at Hopkins, we ran through a whole host of tests, and ruled out pneumonia and UTI, which are the normal culprits of his issues, and waited for the viral panel and RSV test to return. Spent the night in the ER waiting for a bed, as many other children were sick as well. Got a bed around noon today and waited for the results of his outstanding tests, while proactively doing IV fluids and an IV antibiotic. He had a few other episodes of coughing fits, with some unusual vitals again. 

RSV test returned negative and viral panel showed rhinovirus, which is often the culprit of many viral infections and likely a croup diagnosis, which explains the barking cough and the fever. We will hang out here again tonight, hoping for discharge tomorrow if he’s at a point we can care for him at home. 

Between Tylenol doses and breathing treatments, we saw our normal happy boy. He’s back to some of his old shenanigans and telling the staff here just what he thinks of their poking and prodding. 

As always, we will take some positive vibes and prayers for improved health. We know cold and flu season is still very much a concern, so we will continue to be diligent about germ precautions. So thankful for our calm in emergencies neighbor and her heads up thinking, along with his medical team here at Hopkins. 

Hoping for a restful and quiet night tonight. But now that I’ve suggested it, I’m sure he will have other ideas. 

Christmas Magic

It’s hard to believe Wyatt’s first visit with Santa was while he was in the NICU, spending a good amount of time fighting hard against the odds. I remember wishing for some normalcy in our days, but also being so very excited that he would get to meet Santa. Now I can’t help but chuckle because we got to see Santa without fighting a million germs. The “perks” of being inpatient in the hospital, I suppose. We didn’t have to fight any lines of people, only all of his lines for feeds, oxygen, heart rate, pulse ox, and IVs. 

This was his first visit with Santa, almost three years to the day. 

So tiny. He was so small he fit in a stocking that year. I wonder if he’ll let me try stuffing him in a stocking this year...

He got to see Santa again this year. This year poor Santa had his beard tugged and his glasses pulled off. But it was just as magical. 

We remain forever grateful for the progress he’s made these last three years and the memories along the way. Wishing each of you a magical Christmas. 

Birthday Eve...

Sitting here, with tears in my eyes, as I think about how I felt three years ago today, on Wyatt’s birthday eve. I felt anxious, excited, but also terrified. I was terrified of what would come next. What would happen when my son, who was expected to be born with a significant heart defect, took his first breath? Would I know what to do, to care for him, to provide for him, to be his everything? 

I’d love to say those same feelings don’t plague our family regularly. But that isn’t the case. 

The first year of his life, we lived in fear of the scale. Of needing a feeding tube. We lived in fear of a looming diagnosis. We lived in fear of blue spells, choking events, and ambulance rides. The unknown (and sometimes the known) scared us. On the eve of his first birthday, we gathered around his crib in the hospital hoping he would be one step closer to coming home from his g tube placement surgery. 

The second year of his life had fears of a different kind. We had a diagnosis, but we knew it didn’t really describe him. We had more questions than answers. But, somewhere along the way, we realized we had overcome the feeding tube obstacle and he was thriving. Then we got a new diagnosis of obstructive sleep apnea, and we became terrified of that unknown. Some more months (and hospital visits) passed, we lived in fear of his constant infections. Pneumonia. More infections. Bronchitis. We became terrified of germs and viruses. We got his wheelchair, stander, bath seat, BiPAP, first hearing aid, and he continued to grow and thrive. We became terrified of how to manage all of his appointments, his therapies, his needs. We had some more diagnoses that year. Epilepsy was the biggest one. On the eve of his second birthday, however, we gathered around his crib counting our blessings because we were home. We took a moment to reflect and realized we faced our fears head on, and we kept our son alive for two years.

 

The third year of his life has been a wild ride. We are mostly excited, with some anxiety, and much less terror on our minds. We had some scares with seizures, another diagnosis (maybe two.. it’s hard to think when you are sobbing), and added his “boots”. But mostly we lived while laughing, watching, learning. We laughed with Wyatt, we watched him as he learned about the world around us, and learned as he taught us so much. He taught us to live with less fear. To fight for him. To never doubt him. He learned to sit on his own. He got his new hearing aids this year, some shots, some emergency medications. 

On the eve of his third birthday, I feel a lot of feelings. I’m excited... 

.... to see who he continues to grow into. 

.... to watch him continue to learn and explore his world in a new way. 

I’m anxious...

.... to raise a threenager. 

.... about the unknown. 

I’m sad...

.... I tucked in my two year old, and tomorrow he will become a three year old. 

I’m staring, with tears in my eyes, as he laughs at me when he should be sleeping. 

But I’m no longer terrified. 

Holding Our Breath...

We can now exhale. It feels so good. We held our breaths for over a week, not knowing if what we were doing was right. Not knowing if our lives would be changed after the results. Not knowing if what we have been doing was actually working. 

Then we got the call. Wyatt’s sleep study results were good. He did great. 

{Photo of Wyatt in pajamas, sitting in the recliner with a look of surprise on his face. He’s snuggled with his blanket.}

I feel like I should probably explain a little about our worry with having to get a trach. There are risks that come with trachs. Risks that we have seen our friends go through. Infections, clots, damage to vocal chords, damage to swallowing tubes, the list goes on. In the case of any intervention, you have to weigh the risks and the benefits. Because Wyatt has only demonstrated risks to breathing while sleeping, it was hard for us to imagine a trach just for sleep (which he doesn’t do much of...). Always, we would do what was best for him, but we felt confident he didn’t require it. Sure, neither of us our doctors, but we are experts in our son. 

The trach would also mean I likely wouldn’t be able to work, as finding someone to care for a child who is dependent on a ventilator is nearly impossible. We struggled enough to find someone to care for him with a feeding tube and seizures. 

For now? We don’t have to worry. And we are extremely thankful. 

{Photo of Wyatt stretching. He’s wearing his pajamas with his chest showing and a half grin on his face. His feeding tube button and dressing are barely visible.}

We were able to wean Wyatt off of oxygen on the BiPAP and his back up rate, which is the rate at which the machine will breathe for him if he doesn’t breathe, was reduced. The oxygen and back up rate are huge. He had extremely high back up rate on the vent and by pushing this down, we were able to see he can safely breathe at a lower rate. He still likes to “ride the vent”, which means he doesn’t always take spontaneous breaths while on the vent, but he’s doing so safely. All of the measurements they took were clearly within normal and no matter how he breathes, he’s breathing and doing so safely. 

Next step is to follow up with our Pulm team in office and we will get scheduled for another sleep study in 6 months. Our Pulm team felt like one reason he nailed the study is because he’s getting bigger and stronger. We agree. 

Big things this week, developmentally. He’s taking off his socks alone, on command. He’s waving when we wave to him. He’s fighting to get out of his car seat and sit up (thankfully the straps contain him once we wrestle him enough to get him strapped in the seat), and he’s definitely telling us how it is. Most of the time a no is met with him yelling back at us or shaking his head no at us. Typical toddler behavior! We count that as a blessing. 

We have a growth hormone stimulation test in two weeks, which is our next step hormone-wise. This will determine if he needs growth hormone injections. 

Have a great weekend! 

September... already?!

Wow. I know my previous post said time flies when you’re having fun, the same holds true. We have had a busy summer, lots of fun and some set backs. 

{Wyatt gearing up for our trip to Michigan. Collage of photos of him sitting in his high chair, playing with peaches and eating peach yogurt. Peaches are a Michigan summer staple.}

We traveled to Michigan for a little over a week, with a stop in PA on the way there and on the way home. Our trip to Michigan included a fun little virus and ended with hand foot and mouth disease, which cut out PA pit stop short. Upon our return, Wyatt developed a kidney infection, landing him in the hospital for two days. When this kid does things, he does them BIG! One illness? Nah. Two? Nope. Three? You bet. 

While in Michigan we spent time relaxing, swimming, and playing cards. It was a slow paced vacation, for sure. Much appreciated, given the busyness of the rest of the summer. 

{Wyatt practicing his sitting skills, while wearing his pajamas. He has a mischievous grin on his face, seemingly proud of himself.}

Upon our return from Michigan, we have continued to keep up with work, doctors appointments, and trying to have some fun in between. Wyatt has decided he now likes bath time, but much prefers to do things himself. Not just in the bath, but in all areas of his life. Totally typical two year old behavior, with some added frustration on his part since those things are more difficult for him. We continue to look for ways to offer him independence, while practicing the art of saying no and setting limits. Like when he shakes his head no at us and proceeds to take out his hearing aids. We remind him that’s not okay, and replace the aids. Over. And over. And over. 

{Photo of Wyatt brushing his teeth. He’s smiling a crooked smile and appears very happy to be doing it himself. What isn’t pictured is moments before when he was screaming and shaking his head no when Mom tried to do it for him.}

Wyatt has a big week coming up this week. We will head off for a sleep study on Wednesday. You may recall that our last sleep study (oh who are we kidding? Every sleep study!) didn’t go so well and doctors reset him back to his original settings which are very high. The goal at this sleep study is to start him off on the high settings and titrate his machine to fine the, hopefully, perfect setting. Our biggest hope with this sleep study is that his settings can be lowered a bit. The best case scenario would be lower settings. Worst case scenario will be he needs increased assistance/settings while sleeping. If that’s the case, we will begin the conversation about next steps. But we have been told the only next step if he requires higher settings is a trach. One step at a time, though. 

We welcome your continued positive thoughts for progress in his multiple therapies and a sleep study that provides clarity. 

Have a fantastic week! 

Time Flies...

... when you’re having fun! 

We have had a wonderfully busy summer and our favorite guy has done some cool things. It’s probably easier if I just do a photo dump and explain in the photos. 

{Photo of Wyatt wearing a bib that says, “These fools out my cape on backwards”}

Wyatt had his swallow study consult (wearing that rocking bib!) and we determined that at this time we are going to focus on increasing volume rather than texture. She did believe he was safely swallowing the puréed foods, so he can eat as much as he would like. She also said if he’s grabbing for our food or other foods on a tray, we can watch him closely but let him try it. He’s tried pizza, spaghetti, Macaroni and cheese, and some ketchup. We will reassess when his volume increases and he’s taking more by mouth. In the meantime, he’s growing and that’s huge for him. 

{Photo of Wyatt laying on the floor snuggled with his beloved blankie, with a huge grin on his face.}

We met with a few specialists so far this summer and they’ve all been pleased with his progress. His GI joked that she didn’t even recognize him because he’s grown so much, he’s blabbering some more, and moving all over the examine room. She was more than pleased. She was ecstatic! 

{Photo of Wyatt with his daddy. Both of them are wearing bright shirts, his daddy is smiling and Wyatt is trying to eat his fingers.}

We went to a family reunion in Virginia and had a blast visiting with everyone. Wyatt got to swim with his cousins, roll around on the floor, and got lots of love from the aunties. It was nice! He also learned a new skill! Check out the video. 

{Video is Wyatt crawling across the floor trying to get the remote control}

We finally moved into our new home. It may take us a bit to get settled, but it feels good to be home. 

{Photo of Wyatt sleeping in front of two boxes. He’s snuggled in his jammies, not helping to unpack.}

{Photo of Wyatt in a striped bathing suit, giggling at himself while pulling the pant leg on his suit.}

He’s continued with PT both on land and in the water. During these sessions, he never ceases to amaze us with his personality (he’s VERY strong-willed) and definitely does things on his plan, not ours. You can’t see it well in the photo below, but he’s standing. With only support at his ankles. This is HUGE. He also did repeated sit-stands, which he’s never done before. PT was blown away. We just kept saying, “Whoa! Who is this kid?!” (Never mind that he’s licking his PT... and is only motivated by her hands. Whatever works! Thankfully she’s on board with the unusual ways he’s motivated!)

{Photo of Wyatt in his striped bathing suit, in the pool with his PT, standing. His tongue is out, licking his PT}

Can’t believe it’s almost August. We have fun things to look forward to, including a trip to Michigan! 

Sleep Study Update, Photos, and Other “Stuff”

We got the results back from Wyatt’s sleep study. Turns out, he didn’t do so well. The sleep doctor who interpreted the study was terribly alarmed. Thankfully his pulmonologist was able to talk her through his case and eased her fears. She brought up a trach again, which was shocking to us. We have a plan, but that plan involves going back to presurgery settings (which are high, even for a grown adult) and monitoring closely. He will see ENT again to determine if there may be scar tissue impacting his airway, and we will do a repeat sleep study. There were a few variables that likely played a fil in his poor study, including being diagnosed the next day with an infection, no humidification on his machine, and starting him low for the titration instead of starting high and going lower. We will continue to watch to be sure he’s breathing safely and will reassess after the next study. 

{Photo of Wyatt, laughing while wearing his Dino pajamas and with one hearing aid out of his ear because he can’t keep the darn things in his ears}

This week we have a swallow study consult scheduled for Thursday morning. This study will show what texture of foods are safe, given his uncoordinated swallow. Mama is a little nervous, since it involves pushing him a bit with foods and choking is probably the scariest thing I can think of (which is saying a lot, since he’s a medically complex kiddo who has been through lots of scary things...). We are supposed to bring food, so I’m not sure if the appointment will include the actual study or just some practice with food. 

{Photo of Wyatt in a tropical onesie, trying to eat the remote control. The remote control seems to be his favorite thing to try to eat!}

This weekend Wyatt had a bit of a scare while we were at a friends house celebrating her daughters birthday. He had a seizure. This is a little alarming, as his seizures have either been due to a fever, or have been staring spells (partial complex seizures). This seizure was all four limbs convulsing upon waking up. We consulted with the on call neuro who felt like it was okay to keep him home and monitor. We followed up with his primary neurologist who wanted to increase his Keppra. We will continue to monitor and attempt to get it on video if it happens again. It’s easier for her to tell us what may be going on if she can see it. 

{Photo of Wyatt, upside down, laying in the middle of wood floors, in his new house!}

We are hoping to settle on the new house in the middle of July, but Wyatt had the opportunity to lay on the new floors. We were in the house when he had an unfortunate diaper issue, so he had his first diaper change. And since we weren’t ready to have that mess on the carpet, he got the royal treatment on the living room floor. As you can tell, he didn’t seem to mind the freedom the empty room gave him. We look forward to so many adventures in our new home. 

{Photo of Wyatt, mid sit/falling over with his hearing aid laying on the floor next to him. He’s laughing as he’s starting to fall over onto the rug}

We hope you all have a fantastic week and Happy 4th of July a few days early! 

Hearing Aids...

Wyatt did well in the sleep study. Our measure of success continues to be no middle of the night wake up with lab staff sending us to the emergency room. So, we will call it a win. We won’t have results for 3-5 days. I’m also assuming he didn’t do too horribly or they would have sent us home on higher settings. Unfortunately, those sleep lab people are pretty tight lipped. Couldn’t get a read on them. 

{Photo of Wyatt before the sleep study. He’s in his pajamas, smiling.}

{Photo of Wyatt after he was prepped for the sleep study. He’s covered in electrodes, wrapped in gauze, and wearing his giraffe BiPAP mask. He’s looking as if saying, “What are you fools doing to me?”}

The morning started at 4 am, when someone came in the room to move an electrode and he figured that was as good as an alarm clock and was up for the day. Phew. Mama is tired. 

He had an adventure planned with his buddy Brayden at the water park. I think the pictures show just how much he loved it! 

{Photo collage of Wyatt enjoying the water park. Pictures show him giggling in the pool and laughing in the lounge chair.}

After the water park, we headed to get his hearing aids. It was a little overwhelming for him, since he was going on little sleep and had a fun morning at the water park. He was a trooper, though. His hearing aids are a bright teal, with neon green tubing and multicolor molds. 

{Video of Wyatt using his hearing aids for the first time. He is sort of apathetic at first, then starts giggling.}

We look forward to seeing how his super cool hearing aids will positively impact his life. He’s destined for great things, and hearing better will help that! 

I should also note that after hearing aids, he got to visit with the Fox clan and then was tortured (his feelings, not mine) at PT. Thankfully he only used his words (well, screams) to express his frustration, rather than his teeth, which he did in the pool this week. PT has bruises to prove it. Sigh. She takes a beating and still lets us come back each session. 

{Photo of Wyatt showing off his super cool hearing aids. His face appears to be saying, “Mom! You’re so embarrassing!”}

Next week we have endocrine appointment and will *hopefully* close on our new home. Cross your fingers all goes smoothly. 

The Next 24 Hours

Stopping in for a quick update, since I’ve had more than one person remind me that it’s time for an update. 

{Photo of Wyatt, laughing, while sitting in his stroller waiting for an appointment}

This guy has some big things in the next 24 hours. He has a sleep study tonight and hearing aids tomorrow! One of those is a little more exciting than the other. The sleep study is to see how he’s done since having his adenoids removed. We have noticed a huge difference in his sleep, his breathing, and his demeanor. I’m hopeful the sleep study confirms what we saw after his surgery, which was his decreased need for high BiPAP settings. He’s on a very low setting and doing well at home, but the sleep study will monitor things we can’t see or monitor at home. These are things like movement, CO2 levels, and brain activity. 

{Photo of Wyatt enjoying his dinner and his bib. His bib has a Western Michigan University bronco, which is his mommy, Nana, and Papa’s alma mater}

Tomorrow afternoon he has his hearing aid fitting. We are super excited (and nervous!) to see how he responds to being able to hear his environment better. I suspect he’s going to be spending the next couple of weeks reminding us to quiet down. If you know us in real life, you know we aren’t very quiet. I’m also guilty of talking louder to ensure he can hear me. My hope is to try and grab video of him when he uses them for the first time. 

{Photo of Wyatt in bed in the morning, with a huge grin on his face}

We would welcome good vibes for the sleep study tonight, as well as continued health for Wyatt. 

{Photo of Wyatt, sleeping peacefully}