{Wyatt gearing up for our trip to Michigan. Collage of photos of him sitting in his high chair, playing with peaches and eating peach yogurt. Peaches are a Michigan summer staple.}
We traveled to Michigan for a little over a week, with a stop in PA on the way there and on the way home. Our trip to Michigan included a fun little virus and ended with hand foot and mouth disease, which cut out PA pit stop short. Upon our return, Wyatt developed a kidney infection, landing him in the hospital for two days. When this kid does things, he does them BIG! One illness? Nah. Two? Nope. Three? You bet.
While in Michigan we spent time relaxing, swimming, and playing cards. It was a slow paced vacation, for sure. Much appreciated, given the busyness of the rest of the summer.
{Wyatt practicing his sitting skills, while wearing his pajamas. He has a mischievous grin on his face, seemingly proud of himself.}
Upon our return from Michigan, we have continued to keep up with work, doctors appointments, and trying to have some fun in between. Wyatt has decided he now likes bath time, but much prefers to do things himself. Not just in the bath, but in all areas of his life. Totally typical two year old behavior, with some added frustration on his part since those things are more difficult for him. We continue to look for ways to offer him independence, while practicing the art of saying no and setting limits. Like when he shakes his head no at us and proceeds to take out his hearing aids. We remind him that’s not okay, and replace the aids. Over. And over. And over.
{Photo of Wyatt brushing his teeth. He’s smiling a crooked smile and appears very happy to be doing it himself. What isn’t pictured is moments before when he was screaming and shaking his head no when Mom tried to do it for him.}
Wyatt has a big week coming up this week. We will head off for a sleep study on Wednesday. You may recall that our last sleep study (oh who are we kidding? Every sleep study!) didn’t go so well and doctors reset him back to his original settings which are very high. The goal at this sleep study is to start him off on the high settings and titrate his machine to fine the, hopefully, perfect setting. Our biggest hope with this sleep study is that his settings can be lowered a bit. The best case scenario would be lower settings. Worst case scenario will be he needs increased assistance/settings while sleeping. If that’s the case, we will begin the conversation about next steps. But we have been told the only next step if he requires higher settings is a trach. One step at a time, though.
We welcome your continued positive thoughts for progress in his multiple therapies and a sleep study that provides clarity.
Have a fantastic week!
Always love reading your updates and seeing Wyatt growing and smiling! Sounds like you were busy this summer! Hang in there with the sleep studies. Hugs to your beautiful boy! Martha
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