Here we go Again...

Yesterday after meeting with our GI the day before, we were given the go ahead to try transitioning his feeding tube feeds to a portion being in his G port (his stomach) from his J port (small intestines). We were eager to see if we could reduce the time he’s forced to spend on the feeding pump, tied to cords. 

He did great, until he began vomiting profusely. After a few vomiting sessions, some coughing, and desats, he became unresponsive. I called an ambulance and the EMT’s and I were forced to make the difficult decision to go to our local hospital rather than make the 50 minute trek to Hopkins. 

We would always prefer to go where his doctors are, but we understand that safety is paramount and we needed to get him stable before transporting him to Hopkins. At our local hospital they ran some tests, did a chest X-ray and determined he likely aspirated when he was vomiting. That means either food, gastric contents, or both, made their way to his lungs. 

He was transported to Hopkins and taken immediately to the ICU. His night last night was up and down, with oxygen requirements much higher than home and needing BiPAP when he was awake. After some snuggles and playtime, he perked up a bit and we transitioned off of BiPAP when awake to a nasal cannula. This is one step closer to home. 

He’s currently resting in my arms and we have transitioned out of ICU to a step down unit. Hoping for a calm remainder of our stay.