Seizures.

After yet another episode yesterday, that didn’t resolve quickly and required administration of his emergency seizure medication, we now have official word these “episodes” are seizures. 

{black and white photo of Wyatt, wearing his giraffe BiPAP mask, while strapped down on a stretcher in the back of an ambulance}

These episodes have been debilitating for us. Not only because it is horrible to watch your child stop breathing and turn an awful shade of gray, but also because he had stumped most of the medical experts at Hopkins and it seemed like nobody knew what these episodes were. 

I often will whisper to Wyatt that we need him to tell us what he needs, offer us some clarity. Which seems like a lot of responsibility for a 3 year old, but when top doctors can’t get a handle, we have to rely on him. This mornings episode consisted of not only all of the same concerns from previous episodes and he also added in shaking. Which made it abundantly clear that we were dealing with tonic-clonic seizures. When he didn’t respond within 2 mins, I gave his emergency medication and called 911. We needed to be observed since it was the first time we had given Diastat. He responded within 30 seconds. It was a huge relief but we still needed to be checked out. 

{black and white photo of Wyatt moving toward the camera with a grin on his face. The photo is blurry because he’s moving so fast}

After talking with his primary neurologist, we feel like we have a solid plan to tackle these head on. Our first step was a final increase in his Keppra. If this doesn’t work, we will add in a second medication that we can titrate to get the right dose. We remain hopeful we can combat these seizures with medication. 

Here’s to a seizure free weekend and some rest for all of us!