Update 4/28/17

Wyatt had two appointments yesterday- GI and pulmonology. We pretty much knew what GI was going to say, our guy is getting huge! He is. We need to slow down his weight gain, as he's gaining just a little too quickly. Because he has to work extra hard for his milestones, we don't want to add in another contributing factor. Too much weight gain too quickly can impact motor development in low tone babies. So we scaled back his calories and will be changing his formula to see if that helps his output, which in turn will hopefully help his diaper rash. 

 

Our second appointment was at a different location that, depending on traffic, can take anywhere from 10 mins to 30 mins to get to on any given day. So I planned for extra time just in case. Wouldn't you know, we didn't need it today. Oh well. There's a park down the road from our second appointment and we took full advantage of the beautiful weather! Wyatt enjoyed the wind in his hair and rolling around on the blanket. 

 

The pulmonology appointment didn't go so well. They are super concerned, as are we, about his oxygen saturations and his blue episodes. We talked at length about what could be causing these, as well as interventions. We are going to do some tests to see if it's autoimmune related, or something else. We will also add another medicine to his daily routine to see if that will help combat some or the issues. He has his sleep study on May 11th, which will ultimately be the big test. During that appointment, they will titrate his settings on BiPAP. If he doesn't improve on the highest settings, we will be looking at very invasive measures to support his breathing. There is a potential for a trach. We will do whatever he needs, but I would be lying if I said I wasn't hoping for a miracle. We are crossing our fingers and toes that Wyatt tells us what he needs during the sleep study. 

 

For now, we will continue to smother him with kisses!