Some Milestones are Cooler Than Others...

Wyatt’s been hitting some pretty cool milestones lately and its been quite enjoyable watching him continue to develop. Some really cool things he’s started doing:

• Attempting to stand on all the things
• Pulling anything that’s near him 
• Crawling on all fours for short distances
• Cruising in the crib
• Using consonant sounds and making vocalizations to get our attention 
• Assisting with dressing and undressing himself

Some things he’s started doing that aren’t quite as cool (not because he’s making progress but because it puts quite a wrinkle in things)

• Attempting to stand on things that tip
• Pulling anything that’s near him that we need or can break. Ex: my slice of pizza- pulled it right out of my hand, licked it, and threw it to the ground
• Using those consonant sounds and vocalizations at really loud volumes in the middle of the night (or any other inopportune time)
• Undressing himself without our permission. He can’t wait to get into bed and take off his pajama pants. He’s recently explored taking off his shirt as well. And may have figured out how to unlatch his diaper. While it was filled with poop. I’ll let you guess how that ended. (Poorly)

I say each of these in jest and with a smile on my face. We continue to be proud of this little man we created, even if his milestones mean more work for us and a lot more quick thinking (and a little baby proofing). 

Wyatt was in a wedding this weekend and when the bride asked him to be in the wedding back in February, I was fairly anxious about what it might look like for him to be a ring bearer. How would he get down the aisle? What if he acted like a toddler? How disappointed would the bride be if he needed to be pushed in a stroller?

Wouldn’t you know, he had different plans. He rode comfortably (and I’m being told adorably) in a wagon down the aisle with a smile. He also stood with some support with the other ring bearers for photos, and stood and danced with me. I don’t have many photos of the wedding, but will share once the official shots come back. 

I’ll leave you with this...

{blurry zoomed in photo of Wyatt, in a little tuxedo, standing with his mom on the dance floor. Wyatt is holding her hands and dancing. You can’t see it, but both of them are beaming. You also can’t see his dad behind the camera who is beaming as well.}

Oh. And this. 

{Photo of Wyatt, dressed in his pajamas, standing in his crib. He is leaning over the side with a grin on his face.}

Never Boring

Well, our boy has done it again. Stumped an entire team of doctors and left many really smart people scratching their heads. 

{photo of Wyatt, laughing at the camera with a devilish grin}

On Saturday, Wyatt started with a few dots on his body. Nothing alarming, but enough to grab our attention. Sunday he had a seizure, again not alarming but attention grabbing for sure, especially since we had started him on a medication to reduce seizures and he had been almost a week seizure free. The dots turned to full on rash. 

For some super odd reason, rashes get us a bit panicky around here. Which is extremely ridiculous since our “normal” is seizures, not breathing, 911 calls, catheters, etc. Some scary stuff. And we tackle it as it comes. But throw a rash our way and we are unsure what to do. 

Sunday evening we ended up in the ER, since we realized there was a chance the rash was from the new medication, which has a rare but potentially deadly rash as a side effect, causing Stevens-Johnson Syndrome. ER was stumped, but we were sent home. 

Fast forward to Monday, rash had doubled since the night before and he had some desats in the night. We ended up at the pediatricians office (also scratching her head) with the fear that it could be related to the meds but also could be a viral rash. In typical Wyatt fashion, he was presenting with hallmark signs of both types of rashes and nothing super typical for either rash. (Typical isn’t in our vocabulary!) After a consult with neuro at Hopkins, it was determined we would monitor at home and remove the offending medication.  Thank god for pulse ox! What a relief to be able to know his oxygen saturations and heart rate at all times. Both of those would be indicators that things were going south and the rash was evolving requiring emergency attention. 

{photo of Wyatt in his stroller, wearing one sock, a diaper, and giggling. His body is covered in a red rash}

Today he has looked better, rash appears to not have progressed, and we will sleep a bit easier tonight. We certainly aren’t out of the woods, but we are now 24 hours with no meds and the rash hasn’t evolved. Hoping this is a good sign!

As one of my friends put it, we can never accuse Wyatt of being boring!