Hot Wheels

Wyatt got his new wheels and has started to actually enjoy his time in it, which is why I haven’t posted about it... the photos all show him “protesting”. But I think it’s safe to say he’s gotten more used to it and we have learned more about how to make it more fun for him. 

Playing with toys is fun! 

Playing with toys on the tray is LOADS of fun! He’s already learned he can bang things on it, which makes noise and makes him giggle. It’s so fun watching him learn and explore his world. We’ve gone on some walks and we are figuring out ways to use his new ride to do new things. 

This week is pretty calm, other than therapy appointments. We just made a change to his feeds to see if that impacts his weight gain. But judging by this picture, I’m not sure we need to worry. I mean, check out those arm rolls! 

As you can see, he’s feeling much better! Lots of giggles and fun. Cross those fingers and toes he remains healthy. We follow up with the urologist next week and are hoping to get on the schedule for the orthotist in order to get his leg braces. 

Have a fantastic week! 

Well, That’s Ironic...

So, if you’ve been around a while (or have gone back and read from the beginning), you’ll know that back when I was 26 or so weeks pregnant, we were told Wyatt had a complex heart defect called Tetrology of Fallot (TOF). We were prepared for him to have a NICU stay and open heart surgery at some point before he was 6 months old. 

The day I was induced, the cardiologist was super concerned about his heart and growth, following an echocardiogram. He and my OB had a pretty quick convo while I was laying on the bed being monitored for my non-stress test. The convo went something like, “His heart. Not growing. We need him out.” And my OB was all like, “Yeah? Her blood pressure. Those contractions. Labor and delivery.” (I am pretty sure they were speaking in full sentences but I only heard a few words here and there) 

After Wyatt was delivered, they performed another echocardiogram. It was confirmed then that he didn’t actually have TOF, instead he had a dysplastic pulmonary valve, a PDA (causing murmur), and some pulmonary valve stenosis. We would need to monitor closely, but he likely wouldn’t require open heart surgery. 

We followed closely with cardiology since birth, about every 6 months. Yesterday we got full cardiac clearance for TWO YEARS! They don’t want to see him for two years! This is huge! 

Brian looked and me and said, “Well that’s ironic. Remember when we were so concerned about his heart? Now it’s the least of our worries.”

So true. 

This kid, he’s pretty crazy. He continues to remain a medical mystery. Unless you’re looking at his heart. Because his heart looks good. Stable.